Hersher Institute: Module on Ethical Reasoning in Developmental Disabilities
Ashley 'X' Case: Guiding Questions
1. Intro to ethical reasoning in health care
2. The Ashley 'X' Case
Read 2 part Time magazine articles - Click Here
Read 'Friends from Pillow Angels' — overview of what the treatment entails - Click Here
Watch video from a parent's perspective (Charley's Story) - Click Here
3. Guiding questions
What does it mean to parent or be a lifetime caregiver of a profoundly disabled child?
Identify/analyze all ethical dilemmas inherent in this case.
Evaluate who are the players/stakeholders-beliefs, assumptions, and specific knowledge
What might be some alternative actions to be taken by the different stakeholders? List all alternative actions.
What might the consequences be of these alternate actions be? List all consequences
4. Review additional readings/resources, including professional code of ethics
5. Assess all the knowledge you have about this case
6. Make a decision about the course of action you might choose for Ashley (any child/family considering growth attenuation treatment)? Clarify your arguments and defend your course of action.